NJ Law - At Last: February IS Turner Syndrome Awareness Month
Gov. Chris Christie signed a bill into law declaring the month of February as Turner Syndrome Awareness Month. The Foundation is very appreciative to the unanimous support shown.
Asw. Mary Pat Angelini's press release read press release
Teen Camp for Young Women with Turner Syndrome
Young women with Turner Syndrome will be delighted to learn camp will be facilitated under the direction of Beverly Daley, PhD and staff at Kean University, Uinion, NJ on July 6 - 12, 2014. Visit the webpage dedicated to camp.
Turner Syndrome Foundation Welcomes New Employee
Caitlin Gong, a former intern and volunteer, has joined the foundation as a part-time program assistant. Caitlin will be assisting with responding to correspondence, acting as a liaison at the Foundation’s events, updating social media channels, assisting in advocacy efforts, and writing various documents for the website and for meetings and conferences that the Foundation attends. She has a bachelor’s degree in Communications from Monmouth University with a concentration in public relations and journalism and graduated last May.
YES!! NJ Senate Health and Human Services and Senior Citizens Committee Includes Legislative Bill SJR64 in Senate Meeting Agenda on February 4, 2013 read agenda
1/14/13: NJ Legislative Bill AJR65 Unanimously Approved and Up for Vote
Kym Hall accompanied by her husband Cameron stood up to advocate for Turner Syndrome at the NJ Assembly Committee Session held on January 14, 2013 in Trenton, New Jersey. The bill was unanimously approved by the Assembly Health and Senior Service Committee and is posted for voting as early as 1/28/13. The bill will declare the month of February as Turner Syndrome Awareness Month in New Jersey. Contact your legislature and ask them to support AJR65!
Leadership, skill, persistence and passion are traits which allow Kym to focus on making a final push to move the bill forward in New Jersey. Join the Advocacy Team - Volunteer application form
12/21/12: Protect a 100-Year-Old Tradition
12/7/12: Survey for New England Families
12/5/12: Nutropin AQ candidate sought for interview
11/21/12: NIGMS Repository at the Coriell Institute for Medical Research
Collection site announced
9/10/12: A Multidisciplinary Program for Turner Syndrome
Learn more about the center
2013 Clinic Dates:
To date, specialty clinics are scheduled for January, April, July and October. Dates are preliminary and subject to change.
The Alfiero and Lucia Palestroni Center
St. Joseph’s Children’s Hospital
The DePaul Ambulatory Center
11 Getty Avenue
Paterson, New Jersey 07503
For additional information and to schedule an appointment, contact:
Christina Flora, MSGC, CGC
Ashley-Lynn Amoruso, LSW
7/29/12: We are pleased to announce that the Jersey Shore University Medical Center, Neptune, NJ will host a grand rounds on Turner Syndrome with Cynthia Meyers-Seifer, MD and Turner Syndrome Foundation on the importance of early diagnosis and adherence to recommendations for clinical care on October 30, 2012
5/26/12: Turner - Know Your Body - A Digital Information Book on Turner Syndrome edited by Claus. H. Gravholt Download
5/20/12: Head to Toe Women Expo Robbinsville, NJ Attendees Letter
5/5/12: TD Bank will support our charity through the TD Bank Affinity Member Program. Call 1-888-751-9000 to designate Turner Syndrome Foundation as your membership organization, Affinity Code #A3538
5/5/12: Special thanks to TEAM TSF in Long Branch, NJ
5/2/12: Consumer Self-Advocacy Telephonic Webinar Series: Part II Information
5/1/12: Special thanks to TEAM TSF in Nashville, TN
4/12/12: Launch of the new TSFUSA.org website in April 2012 provides additional resources and opportunities to advance communications about Turner Syndrome.