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Patient Events

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September 10, 2016 Transition Workshop, NJ
October 2016, Children's Hospital at Montefiore, NY


Transitioning to Adult Patient and Caregiver Workshop
September 10, 2016 11:30 a.m. Registration - 3:00 p.m.
Save my seat: Advanced registration required

Children's Hospital at Montefiore October 2016

4th Annual Patient Education Workshop at
The Children's Hospital at Montefiore 

Please join us for interesting parent lectures, group activities for the girls, food and refreshments!

Click Here to Sign Up

The Venue:
The Children’s Hospital at Montefiore
The Grand Hall, Tishman Learning Center
112 E 210th St
(Use Gun Hill Road Entrance)
Bronx, NY 10467

Date and Time:
Friday, October ?? 2016
Registration - 2:30 p.m.
Session - 3:00 p.m. to 6:00 p.m.
Event Information Flyer
Order tickets:                                                                  
For your convenience, there are two ways you can order tickets:      
1). Order tickets - or donate - online                                        
2). Order by telephone. Call 732-847-3385 (9am-5pm EDT)

Questions? Email or call 732-847-3385

Sponsor or make an in-kind donation:
If you are interested in sponsoring the event or making an in-kind donation, please contact us. Your gift is important to our success!

Coordinating specialized education conferences for patients and caregivers

The purpose of patient workshops is to provide education, information and support to patients and their caregivers by experienced and knowledgeable providers. Turner Syndrome Foundation workshops have been organized since 2009, and reach patients in communities where they live. Many families travel a great distance to increase their understanding, gain new perspectives and learn about current resources.

Please join us by registering today. If you have any technical difficulty registering online, call 1-800-594-4585 to register by telephone or email 

Patient Testimonies
“Beyond learning more about what is happening inside me, I met a lot of great people.  I felt immediately welcomed into the TSF community with open arms.  I never felt judged, which often happens being the shortest person in a room.  Furthermore, I met other girls with TS for the first time in my life.  I finally didn’t feel like I was alone.  I could talk candidly with them about what I am going through and what I went through as a child.  I’ve never felt comfortable doing that with my friends.  Sure, I’ve told a few close friends what TS is and that I have it, but I’ve never went much further.  As I said, I just never felt comfortable talking about something so personal. “ Jennifer

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