A Nutcracker Sweets: Enchanted Performance & Benefit
Celebrating the Holiday Season with Friends and Families
Greycliff, Moonachie, NJ
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Special thanks to our generous sponsors:
Sofia is all smiles in her festive party dress at the 5th Annual Holiday Party for Friends and Families of the Turner Syndrome Foundation. This annual benefit of the Turner Syndrome Foundation, a national organization dedicated to raising awareness and advocating for all girls and women with the condition. In addition to being held at a new venue, the Graycliff, in Moonachie, The Garden State Ballet accompanied by an orchestra conducted by Ilene Greenbaum performed a spectacular performance of Tchaikovsky’s “The Nutcracker”. Many raved that this years event felt more like a "gala" and the committee raised the bar. 200 guests attended from coast to coast who had ties to Turner Syndrome.
Laura Fasciano's speech illustrated the basis for this work. She shared, " Months ago a man called sharing that his wife was carrying a baby with Turner Syndrome, and I counseled him the best I could. Months passed and I found my scribbled handwritten note on a small piece of paper on my desk. I thought to check on the fate of this child. Statistics show that I should have expected the worst, but when he answered the phone I could hear he was at work, and briefly reintroduced myself. He said, "Thank you ma'am for calling. My baby girl is so beautiful! She had a coarctation of her heart repaired two weeks after birth and she is doing fine. Other than that she is really healthy and we love her so much!" Tearfully spoken, Laura shared that this child, these children, must be provided the dignity of good healthcare and parents much needed education and support. These daily testimonies push the Foundation's mission forward. We thank all who continue to contribute to our appeal for support.
Our goal to celebrate our many blessings and to bring families and friends together for a memorable occasion to benefit the foundation was realized because of countless and invaluable volunteers and supporters. Thank you each and all who attended or sponsored the event. Wishing all a healthy & Happy New Year in 2014!
PATIENT AND CAREGIVER WORKSHOP PROGRAMS
The purpose of patient workshops is to provide education, information and support to patients and their caregivers by experienced and knowledgeable providers. Turner Syndrome Foundation workshops have been organized since 2009, and reach patients in communities where they live. Many families travel a great distance to increase their understanding, gain new perspectives and learn about current resources. Please join us by registering today. If you have any technical difficulty registering online, call 1-800-594-4585 to register by telephone or email firstname.lastname@example.org.
Photo of Children's Hospital at Montefiore, Bronx, NY
PATIENT & CAREGIVER
EDUCATION - INFORMATION - SUPPORT
Coordinating specialized education conferences for patients and caregivers
March 22, 2014 - New York Presbyterian
Weill Cornell Medical College and its affiliated hospital New York Presbyterian Hospital are among the top-ranked clinical and medical research centers in the country. A major international and regional referral center, the hospital is considered among the best in the world and is currently ranked 7th in the nation by U.S. News and World Report. Making patients the center of everything, Weill Cornell physicians and scientists have paved the way for many medical advances and novel therapies to fight human disease.
When: Saturday, March 22, 2014
Where: 525 E 68th St, 6th Floor, M607, NY, NY 10021
TOPICS: Speakers and agenda
Advance registration is required Campus Map Parking Options
June 7, 2014 - Molly Center for Children with Diabetes and Endocrine Disorders
Joseph M. Sanzari Children's Hospital at Hackensack University Medical Center
When: Saturday, June 7, 2014 at 10 a.m.
Where: 30 Prospect Avenue, Hackensack, NJ 07601
TOPICS: Speakers and agenda to be announced
Advance registration is required Driving directions
Fall 2014 - Children's Hospital at Montefiore, Division of Pediatric Endocrinology
When: Aug/Sept 2014
Where: The Grand Hall, Tishman Learning Center
Gun Hill Road Entrance, Bronx, NY
TOPICS: Speakers and agenda to be announced
Registration Advance registration is required Driving directions
If you would like to arrange an education program in your community hospital, please contact email@example.com
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“Beyond learning more about what is happening inside me, I met a lot of great people. I felt immediately welcomed into the TSF community with open arms. I never felt judged, which often happens being the shortest person in a room. Furthermore, I met other girls with TS for the first time in my life. I finally didn’t feel like I was alone. I could talk candidly with them about what I am going through and what I went through as a child. I’ve never felt comfortable doing that with my friends. Sure, I’ve told a few close friends what TS is and that I have it, but I’ve never went much further. As I said, I just never felt comfortable talking about something so personal. “ Jennifer
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