Committee Participatory Volunteers
Areas: Advocacy, Awareness, Education and Research. Volunteers with an interest and expertise in publicity, journalism, marketing, social media, IT, fundraising, special events, clinical research, medical practice, education, policy, patient advocacy, and more..
Committee volunteers are integral to the function of the Foundation. We applaud the time and dedication to the Foundation with an acknowledgement at an annual celebration held in December. New volunteers are sought for an array of activities. If you would like to join a committee, please complete a volunteer application and agreement and send it to firstname.lastname@example.org.
Some of our volunteers are impacted by Turner Syndrome, and some are not. Some will volunteer regularly, while others will contribute once or annually, or whenever needed.
Here is a current list of committee participatory volunteers:
Kimberly Dunn Carolan
Lavaanya Pasupuleti, DO
Special Events Co-Chairperson
Travel for TS Program
Laavanya Pasupuleti, DO
Laavanya Pasupuleti, DO received her B.A. from Rutgers University, and Doctor of Osteopathy (D.O.) from The Philadelphia College of Osteopathic Medicine. Laavanya has a wide variety of experience in health care including but not limited to clinical medicine, public health, and health care IT. She is very excited to be drawing upon her extensive health care background to further the mission of the Turner Syndrome Foundation and to empower individuals. Laavanya's main area of focus will be on development.
Special Events Co-Chairperson
Special Events Co-Chairperson
Program Assistant and
Kimberly Dunn Carolan
Parent Advocate, Social Work and Life Coaching
As an active volunteer with the Turner Syndrome Foundation, I contribute to patient advocacy with a degree in social work. Over the years I have volunteering experience with several organizations and received leadership training for children and adults. My younger daughter was diagnosed with Turner Syndrome at birth. With this added responsibility I was forced into a new dimension of motherhood to organize and manage multiple illnesses, doctors and medical records. Most importantly, I had to learn to be my child's advocate. All of these things have lead me to Life Coaching to help and encourage others. My family members are active contributors to the Foundation, and have teams running in the New Jersey Marathon and Rock 'n' Roll St. Pete Marathon.
National Council of State Leaders - Maine
My daughter, Brooke, was diagnosed with Turner Syndrome at the age of 10 after a year of not growing. For six years we had no one to talk to in regards to this new information. Her providers did what they could to keep us aware of the particular areas to watch out for but emotionally on every other issue we had no one to talk to. I reached out to other organizations across the country and got little back. After hearing from Brooke’s doctor that they see Turner girls occasionally and that they believed many may be left undiagnosed, it caught my eye when I saw your website! I then saw how involved you were with forming teams and making sure awareness was getting out there. That is when I decided, “This is it! These are the people!” That is why I came to New Jersey to meet the people involved with the Turner Syndrome Foundation. It is my mission as a mother to bring awareness back to Maine. My goals are to help doctors reach the families missing out on a diagnosis and to help my daughter, Brooke. The more awareness there is, the more the wheels keep moving. I intend to reach our State House at some point this year and do whatever I can as a parent to help your foundation and our girls!
Patient Advocate, Special Education & Counseling
I am in my forties and was diagnosed at sixteen years of age with Turners Syndrome. I am the youngest of six children along with my twin brother Kyle. I have a great family who are very supportive. Born and raised in Paterson NJ . I never new TS existed before my diagnosis at UMDNJ where they helped me connect with other girls that also had Turner Syndrome. In my spare time I advocate and research for my benefit and others, and have been a volunteer with Turner Syndrome Foundation’s legislative activities in the State of New Jersey. I currently work as a Teacher Tech for the State of NJ and live in North Plainfield with my Husband Cameron.
Parent Advocate, Registered Nurse, MBA
NCSL - Florida
Recently appointed to the newly formed advocacy committee of the Turner Syndrome Foundation, Inc. Mrs. Jubelt held the role of past president and originator of TSSUS Florida Chapter and is parent of a 22-year-old daughter with mosaic TS. She is responsible for programs in the Southeast leading to early diagnosis of TS and recently promoting and facilitating a high-risk team of well-qualified physicians to facilitate delivery of newborn TS babies. She is very active in advocacy and promoting education and awareness working with physicians and medical professionals in the Southeast as well as families newly diagnosed and affected by TS. Mrs. Jubelt is CEO and managing member of APM Services, LLC, a Real Estate Investment Management firm. She has a BS in Nursing and Business in addition to an MBA (International Business) from the Crummer Graduate School of Business, Rollins College, Winter Park, Florida.
A major goal of Jennifer is to have a social group created for young women with Turner Syndrome. You never want to feel like you are alone in having your condition and when she was first diagnosed she didn’t have anyone like her to talk to about her condition. She proposed the idea of having social programs for others with the condition after participating in a research study where she for the first time met other young women with the condition. How does she feel that this will benefit others like her? She said, “I believe the social group will benefit girls with Turners because since there isn’t enough information out there, families and women with Turners don’t know where to turn to. There is a great need to share resources about finding knowledgeable doctors, enrichments, and having the opportunity to speak with others who truly understand. Just to have that kind of support is amazing. Everyone can say I understand, even a psychologist can say they understand, but in reality they have no idea of your feelings. I felt so alone that it would have been nice to talk to someone with Turners so they can help me and guide me. I don’t want any girl to have to feel all that I felt and go through depression. This is why this support group is amazing so girls have a friend that is exactly like them and can help them understand that it’s going to be okay.”
Jennifer is a recent graduate of Kean University and will pursue a PhD in child psychology.
Lic. Clinical Social Worker
NCSL - TX
Parent Advocate & Special Fundraising
NCSL - Massachusetts
Ruth McLean, NY
Parent Advocate and Educator
Cathy Cuttita grew up in Northern New Jersey and holds a Bachelors Degree in Communications. She is a Certified Elementary Education Teacher. Currently, she is working as a reading support specialist. Her passion in life is teaching and her goal is to be a successful advocate for each child in the classroom. She and her husband have three children, one of whom has Turners Syndrome. Cathy became a volunteer with TSF in 2008 before becoming a member of the Education Committee. She is committed to improving the lives of all TS girls.
Shaz Kramer, NJ, NC, UT
Program Assistant and Writer
Caitlin Gong is the program assistant for the Turner Syndrome Foundation assisting in facilitating administrative aspects of the foundation. She has a BA in Communications with a concentration in public relations and journalism from Monmouth University. She is passionate about helping others with Turner Syndrome and enjoys watching the foundation grow and evolve over time.
Junior Program Assistant
Emily Escobar is in her Junior year of studies at Monmouth University majoring in Marine Biology. She is employed through MU's work study program to increase her knowledge of nonprofit business practices and marketing.
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