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Executive Committee
Committees
Areas: Advocacy, Awareness, Education and Research. Volunteers with an interest and expertise in publicity, journalism, marketing, social media, IT, fundraising, special events, clinical research, medical practice, education, policy, patient advocacy, and more..
Committee volunteers are integral to the function of the Foundation. We applaude the time and dedication to the Foundation with an annual acknowledgement at an annual celebration held in December. New volunteers are sought for an array of activities. If you would like to join a committee, please complete a volunteer application and agreement and send it to info@tsfusa.org.
Some of our volunteers are impacted by Turner Syndrome, and some are not. Some will volunteer regularly, while others will contribute at will or when needed. Such committee members, include:
JoLynn Backes
Kimberly Dunn Carolan
Suzanne Chilson
Cathy Cuttita
Yadie Galarza
Caitlin Gong
Kym Hall
Christine Jubelt
Shaz Kramer
Susan Lazar
Ruth Mclean
Jennifer Mormile
Linda Paganucci
Sarah Petrassi
Nick Russo
Jennifer Ryan
Doreen Sullivan
Sheila Tweeddale
JoLynn Backes
Special Events Co-Chair
jbackes@tsfusa.org
Linda Paganucci
Travel for TS Program
travel@tsfusa.org
732-513-1159
Sarah Petrassi
Corporate Sponsorship
spetrassi@tsfusa.org
Jennifer Ryan
TSF Writer/Blogger
jryan@tsfusa.org
Doreen Sullivan
Special Events Chairperson
dsullivan@tsfusa.org
Tammy Topoleski
Program Assistant and
Social Media
ttopoleski@tsfusa.org
Kimberly Dunn Carolan
Parent Advocate, Social Work and Life Coaching
kcarolan@tsfusa.org
As an active volunteer with the Turner Syndrome Foundation, I contribute to patient advocacy with a degree in social work. Over the years I have volunteering experience with several organizations and received leadership training for children and adults. My younger daughter was diagnosed with Turner Syndrome at birth. With this added responsibility I was forced into a new dimension of motherhood to organize and manage multiple illnesses, doctors and medical records. Most importantly, I had to learn to be my child's advocate. All of these things have lead me to Life Coaching to help and encourage others. My family members are active contributors to the Foundation, and have teams running in the New Jersey Marathon and Rock 'n' Roll St. Pete Marathon.
Kym Hall
Patient Advocate, Special Education & Counseling
khall@tsfusa.org
I am a 41 years oldand was diagnosed at sixteen years of age with Turners Syndrome. I am the youngest of six children along with my twin brother Kyle. I have a great family who are very supportive. Born and raised in Paterson NJ . I never new TS existed before my diagnosis at UMDNJ where they helped me connect with other girls that also had Turner Syndrome. In my spare time I advocate and research for my benefit and others, and have been a volunteer with Turner Syndrome Foundation’s legislative activities in the State of New Jersey. I currently work as a Teacher Tech for the State of NJ and live in North Plainfield with my Husband Cameron.
Christine Jubelt
Parent Advocate, Registered Nurse, MBA
cjubelt@tsfusa.org
Recently appointed to the newly formed advocacy committee of the Turner Syndrome Foundation, Inc. Mrs. Jubelt held the role of past president and originator of TSSUS Florida Chapter and is parent of a 22-year-old daughter with mosaic TS. She is responsible for programs in the Southeast leading to early diagnosis of TS and recently promoting and facilitating a high-risk team of well-qualified physicians to facilitate delivery of newborn TS babies. She is very active in advocacy and promoting education and awareness working with physicians and medical professionals in the Southeast as well as families newly diagnosed and affected by TS. Mrs. Jubelt is CEO and managing member of APM Services, LLC, a Real Estate Investment Management firm. She has a BS in Nursing and Business in addition to an MBA (International Business) from the Crummer Graduate School of Business, Rollins College, Winter Park, Florida.
Susan Lazar
Lic. Clinical Social Worker
slazar@tsfusa.org
201-724-6999
Sheila Tweeddale
Parent Advocate & Special Fundraising
Suzanne Chilson
Marketing
schilson@tsfusa.org
Ruth McLean, NY
Parent Advocate
Cathy Cuttita
Parent Advocate and Educator
ccuttita@tsfusa.org
Cathy Cuttita grew up in Northern New Jersey and holds a Bachelors Degree in Communications. She is a Certified Elementary Education Teacher. Currently, she is working as a reading support specialist. Her passion in life is teaching and her goal is to be a successful advocate for each child in the classroom. She and her husband have three children, one of whom has Turners Syndrome. Cathy became a volunteer with TSF in 2008 before becoming a member of the Education Committee. She is committed to improving the lives of all TS girls.
Yadira Galarza
Parent Advocate
ygalarza@tsfusa.org
Jennifer Mormile
Adult Advocate
jmormile@tsfusa.org
Shaz Kramer, NJ, NC, UT
Parent Advocate
skramer@tsfusa.org
Caitlin Gong
TSF Writer
cgong@tsfusa.org
Nick Russo
Education Administration
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