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Public Advocacy

“Children are the future, and they are an extension of a parent’s love and hope for a life well lived.  As for me, my daughter is the light and inspiration to everything I do, especially in my leadership role with the Foundation. She is fortunate in so many ways, yet her struggles, albeit mild, keep me up at night dreaming of solutions that will enable her a lifetime of good health and fulfillment. This quest for health and happiness is universal and far reaching, beyond borders, cultures, ethnicities or social boundaries.  Turner Syndrome is a random disorder. A new baby girl is born every eight hours with TS. We need to learn more about its causes, treatments and how to improve outcomes.”  Laura Fasciano, Founding President & Director


QUICK LINKS:

Call to ACTION
Find Your Elected Officials
Talking Points
Advocacy Communications
Contact Us


Lend your voice. Speak up and speak out!

Join the Band Wagon... Declare February as Turner Syndrome Awareness Month
Share your personal story as to how this condition affects your life and why this legislature is important to you.
Template: Sample letter
If you have any questions, contact advocacy@tsfusa.org
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Lend your voice to important issues.
Join the TSF Advocacy Team. 
Email advocacy@tsfusa.org
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Advocate in YOUR state!

Find Your Elected Officials

President Barack Obama and Vice President Joe Biden
U.S. Senators
U.S. Representatives
State Governors
State Legislators
Tweet a Message to Your Representatives
Contact Your Government, by Agency
Contact Your Government, by Topic
 

Talking Points: 

The Turner Syndrome Foundation has created a tool to support your advocacy efforts. The Short and Sweet Talking Points will help you learn to speak about TS. It is meant to be an introductory guide to help you get the conversation started. Talking Points Guide

Advocacy Communications


Visit the Self-Advocacy 
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